No Longer Alone: Achalasia Stories
Documentary about rare oesophageal disease achalasia. Directed and filmed by Guido Zanghi and produced by Achalasia Action.
Annual Report 2023-24
Our annual report has been submitted to the Charity Commission by the trustees.
Kaye Stotler’s Achalasia Story
For Achalasia Awareness month Kaye tells us her story, in hope it can help others suffering from not just achalasia but other rare diseases. Kaye talks about how finding support was so important to her and how she looked at alternative therapies. Kaye says: “Achalasia is a motility disorder of the esophagus which causes the peristalsis […]
Joanne Mifsud’s Achalasia Story
For Achalasia Awareness month, Joanne is sharing her Achalasia journey, in hope that it can help others. Joanne also raises awareness of the difficulties in finding peer support for achalasia in Malta. “I was admitted to hospital and had a surgery called Heller Myotomy. It was a very complicated surgery but since I was still […]
Amanda Ladell’s Achalasia Story
On Rare Disease Day, Achalasia Action co-founder and Trustee Amanda shares with us her achalasia story
Morven Walker’s Achalasia Story
On Rare Disease Day, Morven shares with us her experience of being diagnosed with achalasia at the height of the COVID-19 pandemic.Â
Nikki Hafner’s Achalasia Story
Nikki shares with us her story of being a proud mom of an Achalasia Warrior and highlights how important support is for carers and loved ones too.
Liz’s Achalasia Story
Ahead of Rare Disease Day, Liz tells us of her experience of recently getting an achalasia diagnosis and of the invaluable support she has received from the Achalasia Facebook community.
Jack Hyett’s Achalasia Story
To raise awareness of achalasia ahead of Rare Disease Day, Jack tells us of his experience with achalasia and how others with the condition have supported him more than health professionals.
Ian Tuddenham’s Achalasia Story
Ahead of Rare Disease Day, Ian tells us of how he recently developed achalasia and of the community he has found via the RARE support group created by Annie-Rose.