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Lorien Schipperus’s Achalasia Story

Lorien smiling and holding a black puppy

On Rare Disease Day, Lorien tells us of how her achalasia was misdiagnosed and of how important it has been for her to receive support from her family, friends and the wider achalasia community

Morven Walker’s Achalasia Story

Morven sat at an outdoor table smiling

On Rare Disease Day, Morven shares with us her experience of being diagnosed with achalasia at the height of the COVID-19 pandemic. 

Liz’s Achalasia Story

Liz cuddling a dog

Ahead of Rare Disease Day, Liz tells us of her experience of recently getting an achalasia diagnosis and of the invaluable support she has received from the Achalasia Facebook community.

Jack Hyett’s Achalasia Story

Headshot of Jack in a suit

To raise awareness of achalasia ahead of Rare Disease Day, Jack tells us of his experience with achalasia and how others with the condition have supported him more than health professionals.

Ian Tuddenham’s Achalasia Story

Picture of Ian Tuddenham

Ahead of Rare Disease Day, Ian tells us of how he recently developed achalasia and of the community he has found via the RARE support group created by Annie-Rose.

Annie-Rose’s Achalasia Story

Picture of Annie-Rose Tate

Ahead of Rare Disease Day we are sharing Annie-Rose’s achalasia story, and highlighting the support she has found by creating an online community and support group.