Pamela Browne’s Achalasia Story
To mark Achalasia Awareness month, Pamela shares her Achalasia journey, in hope that it can help others. Pamela talks about how difficult it was to understand her achalasia when she was diagnosed as a teenager, as she didn’t get support from doctors and couldn’t access appropriate information on the condition. Pamela says: “this is totally […]
Joanne Mifsud’s Achalasia Story
For Achalasia Awareness month, Joanne is sharing her Achalasia journey, in hope that it can help others. Joanne also raises awareness of the difficulties in finding peer support for achalasia in Malta. “I was admitted to hospital and had a surgery called Heller Myotomy. It was a very complicated surgery but since I was still […]
Lorien Schipperus’s Achalasia Story
On Rare Disease Day, Lorien tells us of how her achalasia was misdiagnosed and of how important it has been for her to receive support from her family, friends and the wider achalasia community
Amanda Ladell’s Achalasia Story
On Rare Disease Day, Achalasia Action co-founder and Trustee Amanda shares with us her achalasia story
Morven Walker’s Achalasia Story
On Rare Disease Day, Morven shares with us her experience of being diagnosed with achalasia at the height of the COVID-19 pandemic.
Liz’s Achalasia Story
Ahead of Rare Disease Day, Liz tells us of her experience of recently getting an achalasia diagnosis and of the invaluable support she has received from the Achalasia Facebook community.
Jack Hyett’s Achalasia Story
To raise awareness of achalasia ahead of Rare Disease Day, Jack tells us of his experience with achalasia and how others with the condition have supported him more than health professionals.
Ian Tuddenham’s Achalasia Story
Ahead of Rare Disease Day, Ian tells us of how he recently developed achalasia and of the community he has found via the RARE support group created by Annie-Rose.
Annie-Rose’s Achalasia Story
Ahead of Rare Disease Day we are sharing Annie-Rose’s achalasia story, and highlighting the support she has found by creating an online community and support group.
Natasha’s Achalasia Story
The first achalasia story that we are sharing ahead of Rare Disease Day is Natasha Beech’s story.