Lorien Schipperus’s Achalasia Story
On Rare Disease Day, Lorien tells us of how her achalasia was misdiagnosed and of how important it has been for her to receive support from her family, friends and the wider achalasia community
Amanda Ladell’s Achalasia Story
On Rare Disease Day, Achalasia Action co-founder and Trustee Amanda shares with us her achalasia story
Morven Walker’s Achalasia Story
On Rare Disease Day, Morven shares with us her experience of being diagnosed with achalasia at the height of the COVID-19 pandemic.
Nikki Hafner’s Achalasia Story
Nikki shares with us her story of being a proud mom of an Achalasia Warrior and highlights how important support is for carers and loved ones too.
Liz’s Achalasia Story
Ahead of Rare Disease Day, Liz tells us of her experience of recently getting an achalasia diagnosis and of the invaluable support she has received from the Achalasia Facebook community.
Jack Hyett’s Achalasia Story
To raise awareness of achalasia ahead of Rare Disease Day, Jack tells us of his experience with achalasia and how others with the condition have supported him more than health professionals.
Ian Tuddenham’s Achalasia Story
Ahead of Rare Disease Day, Ian tells us of how he recently developed achalasia and of the community he has found via the RARE support group created by Annie-Rose.
Annie-Rose’s Achalasia Story
Ahead of Rare Disease Day we are sharing Annie-Rose’s achalasia story, and highlighting the support she has found by creating an online community and support group.
Natasha’s Achalasia Story
The first achalasia story that we are sharing ahead of Rare Disease Day is Natasha Beech’s story.
Achalasia Action and Rare Disease Day 2024
Rare Disease Day is on 29 February – will you join Achalasia Action in raising awareness of achalasia and our supportive community on the rarest day of the year?