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Privacy Policy

Last updated: 19 January 2023

1 ABOUT THIS POLICY

1.1 This policy explains what personal information we collect from you when you use our services or visit our website.

1.2 Achalasia Action is committed to being clear about what we do with your personal information and meeting regulatory requirements.

2 DATA COLLECTION

2.1 Achalasia Action may collect personal information that we receive when you:
  • use our service
  • use our website
  • contact us
  • download a PDF from our website

2.2 We may collect the following types of data:

  • provide you with our services such as information about meetings or opportunities to take part in research projects.
  • meet our legal and regulatory obligations.

2.3 We will only keep your personal information for as long as needed to carry out a particular purpose or meet a particular task.

3 WEBSITE COOKIES

3.1 A cookie is a small piece of information that is placed on your computer when you visit certain websites. When we refer to “cookies” we include other technologies with similar purposes, such as tags and identifiers.

3.2 When you first visit our site using a new browser, or if you visit in private browsing mode, we will provide you with a cookies permission banner seeking your consent to use of cookies as required by law. From this banner you will be able to access our cookies management tool. By clicking ‘OK’ or clicking through to any part of the site, we will start to manage your visit using cookies.

3.3 We have no access to third-party cookies and third-party organisations have no access to ours. The third-party organisations that place cookies, including your browser (such as Google) and the third-party companies who pay for advertising and analytics services using this information will have their own privacy policies.

4 WHY DO WE COLLECT YOUR INFORMATION?

4.1 We collect your personal information to enable us to:

  • your name, address, email address, telephone number and other contact details.
  • information needed to conduct our services and details of which part of our services are used.

5 HOW DO WE COLLECT THIS INFORMATION?

5.1 We collect your personal information:

  • when you get in touch to receive our services, supply contacts for research, or sign up to a download on our website.
  • from publicly available sources, e.g. from social media and internet services.

5.2 We will always aim to keep your personal information as up to date as possible. However, if you believe we have made an error, or wish to check what information we hold about you, please let us know and we will rectify any problems as soon as reasonably possible. You may ask us to correct or remove any inaccurate information.

6 KEEPING YOUR DATA SAFE

6.1 We are committed to keeping all personal data secure to protect it from being inappropriately or accidentally accessed, used, shared or destroyed, and against data being lost.

7 THIRD-PARTY ACCESS

7.1 Access to your personal information is only allowed when required by law. We do not, and will never, share your personal information with third parties.

7.2 We will not share your personal information with our service providers unless you specifically consent to this. This includes accountants, auditors, lawyers, IT support, hosting service providers, marketing and advertising. All our systems are located within the UK or EEA.

8 FUNDRAISING

8.1 If you have consented to receive fundraising information, you can choose to opt out at any time by emailing admin@achalasia-action.org

9 LINKS TO OTHER WEBSITES

9.1 Our website might contain links to other websites of interest. We do not have control over these websites, and so cannot be responsible for the protection/privacy of your personal information whilst visiting them.

10 ACCESS TO PERSONAL INFORMATION

10.1 To make a request for any personal information we may hold, or for any questions about this policy, please email admin@achalasia-action.org

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