No Longer Alone: Achalasia Stories
10/06/2026
Documentary about rare oesophageal disease achalasia. Directed and filmed by Guido Zanghi and produced by Achalasia Action.
News & Blog
Latest Achalasia news and blog articles
We are recruiting two new volunteers!
02/01/2026
We are recruiting two new volunteer roles: You can find out more about the roles below. Please get in touch with us if you are
Brandon-Lee’s Achalasia Story
18/08/2025
Brandon-Lee’s journey with achalasia has been tough, with years of misdiagnosis and struggles. Despite the challenges, he’s stayed strong, supported by family, friends, and workmates.
Achalasia Action’s response to Government’s welfare reform consultation
27/06/2025
A call to action to all our supporters Achalasia Action has submitted a response to the Government’s welfare reform consultation ‘Pathways to Work: Reforming Benefits
Annual Report 2023-24
30/10/2024
Our annual report has been submitted to the Charity Commission by the trustees.
Kaye Stotler’s Achalasia Story
29/09/2024
For Achalasia Awareness month Kaye tells us her story, in hope it can help others suffering from not just achalasia but other rare diseases. Kaye
Pamela Browne’s Achalasia Story
14/09/2024
To mark Achalasia Awareness month, Pamela shares her Achalasia journey, in hope that it can help others. Pamela talks about how difficult it was to
Joanne Mifsud’s Achalasia Story
12/09/2024
For Achalasia Awareness month, Joanne is sharing her Achalasia journey, in hope that it can help others. Joanne also raises awareness of the difficulties in
Lorien Schipperus’s Achalasia Story
29/02/2024
On Rare Disease Day, Lorien tells us of how her achalasia was misdiagnosed and of how important it has been for her to receive support from her family, friends and the wider achalasia community
Amanda Ladell’s Achalasia Story
29/02/2024
On Rare Disease Day, Achalasia Action co-founder and Trustee Amanda shares with us her achalasia story
Morven Walker’s Achalasia Story
28/02/2024
On Rare Disease Day, Morven shares with us her experience of being diagnosed with achalasia at the height of the COVID-19 pandemic.Â
Nikki Hafner’s Achalasia Story
26/02/2024
Nikki shares with us her story of being a proud mom of an Achalasia Warrior and highlights how important support is for carers and loved ones too.
Liz’s Achalasia Story
25/02/2024
Ahead of Rare Disease Day, Liz tells us of her experience of recently getting an achalasia diagnosis and of the invaluable support she has received from the Achalasia Facebook community.
Jack Hyett’s Achalasia Story
24/02/2024
To raise awareness of achalasia ahead of Rare Disease Day, Jack tells us of his experience with achalasia and how others with the condition have supported him more than health professionals.
Ian Tuddenham’s Achalasia Story
23/02/2024
Ahead of Rare Disease Day, Ian tells us of how he recently developed achalasia and of the community he has found via the RARE support group created by Annie-Rose.