Annual Report 2023-24
30/10/2024
Our annual report has been submitted to the Charity Commission by the trustees.
News & Blog
Latest Achalasia news and blog articles
Kaye Stotler’s Achalasia Story
29/09/2024
For Achalasia Awareness month Kaye tells us her story, in hope it can help others suffering from not just achalasia but other rare diseases. Kaye
Pamela Browne’s Achalasia Story
14/09/2024
To mark Achalasia Awareness month, Pamela shares her Achalasia journey, in hope that it can help others. Pamela talks about how difficult it was to
Joanne Mifsud’s Achalasia Story
12/09/2024
For Achalasia Awareness month, Joanne is sharing her Achalasia journey, in hope that it can help others. Joanne also raises awareness of the difficulties in
Lorien Schipperus’s Achalasia Story
29/02/2024
On Rare Disease Day, Lorien tells us of how her achalasia was misdiagnosed and of how important it has been for her to receive support from her family, friends and the wider achalasia community
Amanda Ladell’s Achalasia Story
29/02/2024
On Rare Disease Day, Achalasia Action co-founder and Trustee Amanda shares with us her achalasia story
Morven Walker’s Achalasia Story
28/02/2024
On Rare Disease Day, Morven shares with us her experience of being diagnosed with achalasia at the height of the COVID-19 pandemic.
Nikki Hafner’s Achalasia Story
26/02/2024
Nikki shares with us her story of being a proud mom of an Achalasia Warrior and highlights how important support is for carers and loved ones too.
Liz’s Achalasia Story
25/02/2024
Ahead of Rare Disease Day, Liz tells us of her experience of recently getting an achalasia diagnosis and of the invaluable support she has received from the Achalasia Facebook community.
Jack Hyett’s Achalasia Story
24/02/2024
To raise awareness of achalasia ahead of Rare Disease Day, Jack tells us of his experience with achalasia and how others with the condition have supported him more than health professionals.
Ian Tuddenham’s Achalasia Story
23/02/2024
Ahead of Rare Disease Day, Ian tells us of how he recently developed achalasia and of the community he has found via the RARE support group created by Annie-Rose.
Annie-Rose’s Achalasia Story
20/02/2024
Ahead of Rare Disease Day we are sharing Annie-Rose’s achalasia story, and highlighting the support she has found by creating an online community and support group.
Natasha’s Achalasia Story
20/02/2024
The first achalasia story that we are sharing ahead of Rare Disease Day is Natasha Beech’s story.
Achalasia Action and Rare Disease Day 2024
07/02/2024
Rare Disease Day is on 29 February – will you join Achalasia Action in raising awareness of achalasia and our supportive community on the rarest day of the year?
Annual Report 2022-23
19/10/2023
Our annual report has been submitted to the Charity Commission by the trustees.