On Rare Disease Day, Lorien tells us of how her achalasia was misdiagnosed and of how important it has been for her to receive support from her family, friends and the wider achalasia community
On Rare Disease Day, Achalasia Action co-founder and Trustee Amanda shares with us her achalasia story
On Rare Disease Day, Morven shares with us her experience of being diagnosed with achalasia at the height of the COVID-19 pandemic.
Nikki shares with us her story of being a proud mom of an Achalasia Warrior and highlights how important support is for carers and loved ones too.
Ahead of Rare Disease Day, Liz tells us of her experience of recently getting an achalasia diagnosis and of the invaluable support she has received from the Achalasia Facebook community.
To raise awareness of achalasia ahead of Rare Disease Day, Jack tells us of his experience with achalasia and how others with the condition have supported him more than health professionals.
Ahead of Rare Disease Day, Ian tells us of how he recently developed achalasia and of the community he has found via the RARE support group created by Annie-Rose.
Ahead of Rare Disease Day we are sharing Annie-Rose’s achalasia story, and highlighting the support she has found by creating an online community and support group.
The first achalasia story that we are sharing ahead of Rare Disease Day is Natasha Beech’s story.
Rare Disease Day is on 29 February – will you join Achalasia Action in raising awareness of achalasia and our supportive community on the rarest day of the year?
Our annual report has been submitted to the Charity Commission by the trustees.
On 10 March 2023, Achalasia Action was represented at the annual meeting of the British Society for Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) in Windsor.
On 22 March 2023, Majid Hashemi and Alan Moss attended a meeting of the All Party Parliamentary Group on Health called to discuss Government Action on Major Conditions and Diseases
One of the most distressing symptoms experienced by achalasia patients are painful spasms emanating from the oesophagus, often without any obvious trigger.
Although achalasia is often diagnosed later in life, there are a number of cases where children suffer from the condition.
