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Meet our team of trustees

Structure, Governance and Management

Achalasia Action was registered by the Charity Commission of England and Wales as a Charitable Incorporated Organisation on 14 January 2020 (no 1187367).

We are governed by a foundation model constitution in which our charity trustees are our only voting members. We are the only UK registered charity specialising in achalasia, a medical condition affecting around 6,000 people that prevents food properly reaching the stomach because of problems with nerve endings controlling the muscles in the oesophagus.

We have no paid employees or advisors and do not occupy dedicated premises.

In December 2021 we were delighted to appoint Consultant Upper GI surgeon Mr Sacheen Kumar PhD MRSC (Chem) FRCS (Gen Surg) from Royal Marsden hospital as an honorary medical advisor. We especially value Mr Kumar’s experience of treating benign oesophageal conditions including achalasia and his role as honorary clinical senior lecturer in the Division of Surgery at Imperial College, London.

We are also very fortunate to have access to the advice and support of other medical advisors:

  • Professor Anthony Hobson MPhil PhD,
    Clinical Director and Senior Clinical GI Scientist of the Functional Gut Clinic
  • Dr Ahmed Albusoda MD PhD,
    Consultant Gastroenterologist, Bart’s and Royal London Hospital.

Need help? Call the helpline on 0300 772 7795 or email

Need help?
Call the helpline on 0300 772 7795

or email

"The oesophagus itself does not have many nerves as such, but the spasms can continue to build up progressively and transmit pain to other parts of the body"

Helping you live with Achalasia from day to day