Achalasia Action was registered by the Charity Commission of England and Wales as a Charitable Incorporated Organisation on 14 January 2020 (no 1187367).
We are governed by a foundation model constitution in which our charity trustees are our only voting members. We are the only UK registered charity specialising in achalasia, a medical condition affecting around 6,000 people that prevents food properly reaching the stomach because of problems with nerve endings controlling the muscles in the oesophagus.
We have no paid employees or advisors and do not occupy dedicated premises.
We hold larger scale meetings with specialist speakers, with diverse and interesting subjects related to achalasia. These meetings give the opportunity to take part in question and answer sessions, and there will invariably be questions asked on topics other than the main theme of the session. Our Medical Chair, Mr Majid Hashemi FRCS, has chaired and led these meetings since 2012, along with a panel of invited experts and clinical and specialist members of our advisory panel. They include presentations from the medical chair as well as interactive Q and A sessions with Majid and the specialist panels.
We are also very fortunate to have access to the advice and support of other medical advisors who include:
